Talking about my health has been a theme of this blog not just recently but for quiet a while, which is unsurprising. As on Monday (July 2nd) was the 4th anniversary of my first major seizure. And each posting since has basically said how hard its been but that I am getting better.
Sadly I don't think that that's true. Clearly I'm better than right at the start, well I nearly died so couldn't have got worse or stayed there really. But I'm still at the stage of 'just about managing' day to day life. I've had to stop the very little amount of work I was doing, because I was simply not up to it.
I am looking for stuff to do on a voluntary bases because, put simply, if on the day I don't feel up to it then I can simple cancel. But not too much has come of these plans yet. I also have a social worker who along with Emily is helping me out. And I am trying to come to terms with the idea that some (maybe a lot) of the changes in my life are going to be permeant, which I find a depressing thought.
I am still looking for ways to adjust and somethings have changed and are helping but its going to be a very very long process. A bright spot is my talmud studying with Tina (as mentioned before) and having a second Talmud partner and new (or renewed) friend, Francesca we also study talmud together (what can I say I love studying talmud) but we also do other stuff, she's one of the few people who can prise me out of my flat. In fact she's accompanying me back home to Stoke on my next visit. (This weekend).
I am really looking forward to that. I am also researching some voluntary work I can do, so I can get back out there, but also cancel at short notice if I'm having a difficult day when it comes to narcolepsy, epilepsy et al. But we'll see how things go.
Its coming up to eight years! since starting at rabbinical school (2923 days-but who's counting).
I think this brings this blog up to date, which isn't that hard because not a lot is changing and changes that are happening are happening really very slowly.
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